My brother suffered … My brother suffered with Crohns from the age of 16, he passed away last week from squamous cell carcinoma aged 49, he would get a bad flare up of crohns every couple of years around 12 years ago he developed fistluas these were sucessfully treated by surgery, 5 years later he again developed fistulas which were treated with surgery, the fistulas returned again in september 2008, this time surgery did not heal the fistulas he had a MRI scan were it was found that the fistulas had become cancerous
THanks for sharing … THanks for sharing this video.
WiLL/Chicago
Comment by willykid83 — November 2, 2009 @ 2:58 pm
are you on facebook … are you on facebook? Theres a good group on there for Crohn’s patients…or tons of info sites on the web that I have been joining the discussion groups. Get on there and get informed. Drop me a line anytime.
(cont) but make … (cont) but make sure you have lots of OJ, eggs, things high in protein so you don’t get too tired to want to eat which was where I was at…try to at least eat a little something at every meal (not just a piece of white bread tho because there’s no nutrients in that. Add peanut butter, fish, stirfrys (with the veggies well softened…not just a dump it in and go stirfry but cook it more – like steamed almost) stuff thats not too heavy when yer not hungry but will give you nutrients.
(cont) with crohn’s … (cont) with crohn’s we have a hard time absorbing nutrients and once you start on some meds you will be needing the extra nutrients, or even if you arent very hungry then maybe a one a day supplement? I know it wouldnt get you everything but it’d be a start. When I lost all that weight the hospital put me on a low fiber (because of the flare up) and high energy diet (Butter or extra gravy on everything) – not that I suggest that as i quickly packed the weight on…
I think it does have dairy as it is a calcium drink. Maybe the mixing the carnation with the low lactaid milk would be better, I was just throwing out what I know had worked for me. I was drinking low lactaid milk and taking a boost a day, but if you are really someone badly affected then going with the carnation route would likely be best. I am female. Another thing are you taking any supplements yet? I was recommended to start taking calcium and vitamin d supplements. (As …cont)
Is the boost pretty … Is the boost pretty easy on the belly?? no dairy? I will give it a try for sure. I am kinda scared. I have not weighed 111 lbs since I was a teeenager. I sould wiegh at least 125. Thanks so much. Do you have any other suggetions? do you mind me asking if you are male or female?
Comment by rwhiteangel — November 2, 2009 @ 2:58 pm
Hi Angel,
I drink … Hi Angel,
I drink a boost everyday as that was what I got used to in the hospital. There is also an Equate brand of the same thing that isn’t too bad, not as sweet as the boost. You should really try something like that just to be keeping to get your nutrients (or some of them) I would hate for you to be as badly malnourished as I was when they admitted me. Try the boost – It goes on sale at walmart sometimes- i would suggest getting the high protein ones and at least seeing how you feel. XOX
Jammie, I live in … Jammie, I live in Nevada and I am going down to the state to ask for medical. maybe, they can help as far as the meds can not afford and no there are no grats just welfare!! sucks! Please pray for me, I hope they approve. I am trying to eat ~ I mean whatever just so I can gain something or absorb somthing as far as nutrients. Have any of you tried ensure? It so expensive, so I thought I would try carnation breakfast and mix it with lactaid free milk..
Comment by rwhiteangel — November 2, 2009 @ 2:58 pm
Is there no grants … Is there no grants that you can apply for? Where do you live rwhiteangel? I lost 35 lbs in a month when I was diagnosed but if you get too malnourished or dehydrated you are only going to get worse. please take care. At least work on your diet as much as possible. I know its hard but eat what you can.
I hope you recieved … I hope you recieved treatment! No worries as long as you are treated!!! hang in there, I know it sucks!!!! I have lost 26 LBS in the last 2 months~ needing medical attention myself, too bad I do not have insurance right now… grrrr the pentasa and endcort is so EXPENSIVE!!!!! GRRRR
Comment by rwhiteangel — November 2, 2009 @ 2:58 pm
Professor Borody … Professor Borody interview. Must watch.
IBDvideos’ channel playlist
Narrated slide presentation οf thе crohn’s disease
Sorry to hear about …
Sorry to hear about your brother. Do you have any other brothers or sisters?
Comment by soboboo — November 2, 2009 @ 2:58 pm
My brother suffered …
My brother suffered with Crohns from the age of 16, he passed away last week from squamous cell carcinoma aged 49, he would get a bad flare up of crohns every couple of years around 12 years ago he developed fistluas these were sucessfully treated by surgery, 5 years later he again developed fistulas which were treated with surgery, the fistulas returned again in september 2008, this time surgery did not heal the fistulas he had a MRI scan were it was found that the fistulas had become cancerous
Comment by essent100 — November 2, 2009 @ 2:58 pm
thats what your …
thats what your suppose to stay away from.
Comment by jpaulson72891 — November 2, 2009 @ 2:58 pm
would eating fruit …
would eating fruit and fibre help atall?
Comment by muzza798 — November 2, 2009 @ 2:58 pm
THanks for sharing …
THanks for sharing this video.
WiLL/Chicago
Comment by willykid83 — November 2, 2009 @ 2:58 pm
are you on facebook …
Drop me a line anytime.
are you on facebook? Theres a good group on there for Crohn’s patients…or tons of info sites on the web that I have been joining the discussion groups. Get on there and get informed.
Comment by jamie2462 — November 2, 2009 @ 2:58 pm
(cont) but make …
(cont) but make sure you have lots of OJ, eggs, things high in protein so you don’t get too tired to want to eat which was where I was at…try to at least eat a little something at every meal (not just a piece of white bread tho because there’s no nutrients in that. Add peanut butter, fish, stirfrys (with the veggies well softened…not just a dump it in and go stirfry but cook it more – like steamed almost) stuff thats not too heavy when yer not hungry but will give you nutrients.
Comment by jamie2462 — November 2, 2009 @ 2:58 pm
(cont) with crohn’s …
(cont) with crohn’s we have a hard time absorbing nutrients and once you start on some meds you will be needing the extra nutrients, or even if you arent very hungry then maybe a one a day supplement? I know it wouldnt get you everything but it’d be a start. When I lost all that weight the hospital put me on a low fiber (because of the flare up) and high energy diet (Butter or extra gravy on everything) – not that I suggest that as i quickly packed the weight on…
Comment by jamie2462 — November 2, 2009 @ 2:58 pm
Hi angel,
I think …
Hi angel,
I think it does have dairy as it is a calcium drink. Maybe the mixing the carnation with the low lactaid milk would be better, I was just throwing out what I know had worked for me. I was drinking low lactaid milk and taking a boost a day, but if you are really someone badly affected then going with the carnation route would likely be best. I am female. Another thing are you taking any supplements yet? I was recommended to start taking calcium and vitamin d supplements. (As …cont)
Comment by jamie2462 — November 2, 2009 @ 2:58 pm
Is the boost pretty …
Is the boost pretty easy on the belly?? no dairy? I will give it a try for sure. I am kinda scared. I have not weighed 111 lbs since I was a teeenager. I sould wiegh at least 125. Thanks so much. Do you have any other suggetions? do you mind me asking if you are male or female?
Comment by rwhiteangel — November 2, 2009 @ 2:58 pm
Hi Angel,
I drink …
Hi Angel,
I drink a boost everyday as that was what I got used to in the hospital. There is also an Equate brand of the same thing that isn’t too bad, not as sweet as the boost. You should really try something like that just to be keeping to get your nutrients (or some of them) I would hate for you to be as badly malnourished as I was when they admitted me. Try the boost – It goes on sale at walmart sometimes- i would suggest getting the high protein ones and at least seeing how you feel. XOX
Comment by jamie2462 — November 2, 2009 @ 2:58 pm
Jammie, I live in …
Jammie, I live in Nevada and I am going down to the state to ask for medical. maybe, they can help as far as the meds can not afford and no there are no grats just welfare!! sucks! Please pray for me, I hope they approve. I am trying to eat ~ I mean whatever just so I can gain something or absorb somthing as far as nutrients. Have any of you tried ensure? It so expensive, so I thought I would try carnation breakfast and mix it with lactaid free milk..
Comment by rwhiteangel — November 2, 2009 @ 2:58 pm
Is there no grants …
Is there no grants that you can apply for? Where do you live rwhiteangel? I lost 35 lbs in a month when I was diagnosed but if you get too malnourished or dehydrated you are only going to get worse. please take care. At least work on your diet as much as possible. I know its hard but eat what you can.
Comment by jamie2462 — November 2, 2009 @ 2:58 pm
I hope you recieved …
I hope you recieved treatment! No worries as long as you are treated!!! hang in there, I know it sucks!!!! I have lost 26 LBS in the last 2 months~ needing medical attention myself, too bad I do not have insurance right now… grrrr the pentasa and endcort is so EXPENSIVE!!!!! GRRRR
Comment by rwhiteangel — November 2, 2009 @ 2:58 pm
Professor Borody …
Professor Borody interview. Must watch.
IBDvideos’ channel playlist
Comment by IBDvideos — November 2, 2009 @ 2:58 pm
Uhh, i think i have …
Uhh, i think i have it. I better see the Hostpital tomorrow or it will lead to death.
Comment by jak12321 — November 2, 2009 @ 2:58 pm